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Inside this Issue

President Obama's Mistake
Opens Doors for Advancing Disabilty Agenda

President Obama's appearance, and subsequent gaffe, on The Tonight Show certainly drew attention to disabilities, but more significantly, it presented the disability community with an opportunity to educate the public that words do matter, and more needs to be done to ensure all Americans, with and without disabilities, are treated fairly and have the chance to live full, independent lives.

To that end, UCP National Board Trustee Rich Donovan, along with fellow Board Trustee Duncan Wyeth and disability advocate Dustin Longstreth, have co-signed an open letter to President Obama, encouraging him to use his misstep to shed light on, and find solutions for, the many challenges still facing people with disabilities today. View the open letter here.

UCP National Office Online Auction Opens April 13th

The United Cerebral Palsy online auction opens April 13th. Some items include a Kindle, framed art, an accessible getaway, an autographed Washington Redskins Jersey, and a Washington Wizards basketball autographed by the entire team!

Help us create a Life Without Limits for people with disabilities by viewing these items, and many more, right now at www.ucp.cmarket.com.

For more information about the auction, please contact Emily Dolenz at 202-973-7100.

High School Teams Increase Mobility,
Accessibility for Two UCP Clients

For Marla and Jerina, two UCP consumers, the 2009 JETS/AbilityOne National Engineering Design Challenge (NEDC) has created new opportunities for achieving life without limits.

The NEDC is a real-world high school design competition in which teams of students from across the nation design and build an assistive technology device for use by a person with a disability in his or her workplace. Beginning in August 2008, teams first identified a problem to solve and then worked together to design, test and present their device. The top five finalists were selected by a panel of judges to compete in the NEDC Finals competition in Washington, D.C. on February 26th.

Bishop Kelly High School in Boise, Idaho and Commack School in Commack, New York whose project we previously reported on in UCPeople each designed and built an assistive technology device for a person they met through their local UCP organization.

Bishop Kelly High School created the SHAGS: Syringe Holding and Guidance System for Marla, a nurse with an essential tremor. Commack High School created NOW: The New Office Workstation for office employee Jerina Porterfield, who has Cerebral Palsy.

Both teams won second place and $1,500 for their schools.

"Through United Cerebral Palsy in Boise, our team was introduced to Marla, a nurse who has essential tremors. After meeting with her to better understand how we might be able to assist her, the students worked over the course of several weeks to brainstorm and come up with a device that would assist Marla with filling syringes with meds for her patients more safely. This led to the design and construction of our device which holds multiple syringe sizes as well as multiple vial sizes and allows Marla to fill the syringes much more safely. The whole process turned out to be very educational and eye-opening for our students and coaches in terms of disability awareness and how much need is out there for solutions," remarked Dr. Guy Hudson, Bishop Kelly High School's team coach.

"Jerina [from UCP Suffolk] was inspirational and helpful at all times. She really motivated us to design something that could help her as a person, elevating the challenge beyond an assignment," said Commack High School student and team member Erica.

For more information about NEDC, visit the Junior Engineering Technical Society (JETS) Web site or contact Stephanie Hurd at (571) 212-4973.

Reminder: Visit Ruby's Bequest Today

It's not too late to join in Ruby's Bequest, the conversation and collaboration happening right now and for only 2 ½ more weeks at http://www.RubysBequest.org. You don't need a big idea that saves the world — start by sharing even one small thing that you'd change or improve about how we provide care to others.

Ruby's Bequest takes place in the town of Deepwell — the "town that doesn't care right" — and Deepwell in the year 2012 has had many health and care services cut and de-funded lately. The community is beginning to step up and fill in the gaps, but we need every contribution we can get.

To get started, first take 30 seconds to become a Friend of Deepwell at http://www.RubysBequest.org/addhero.aspx and, once you have a Deepwell name, you can share your thoughts in our easy online form, by e-mailing it to readmystory@rubysbequest.org, or calling us at 1-888-64-RUBYS.

Not sure what to say?
Here are questions that we still need help with:

  • » What gaps do you imagine we'll face as we provide care, in 2009, 2012, or beyond?
  • » How do you think communities can come together to fill in these gaps? What models might work?
  • » What have you learned that you would suggest other people, groups, communities try?

Your thoughts and ideas really can make the future a better place for everyone that cares.

Please visit http://www.RubysBequest.org and sign up today.

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