Username: Password:

Tell A Friend

UCP AffNet Entrance [password required]
United Cerebral Palsy

scroll down to content

Having trouble viewing? Click here.
 
Inside this Issue

November is National Family Caregiving Month

Speak Up LogoUCP is pleased to be an endorsing organization of National Family Caregiving Month, created by the National Family Caregivers Association (NFCA), to bring attention to the needs of family caregivers. The theme is "Speak Up," which emphasizes the importance of advocating for the loved ones we care for and for caregivers to reach out to others for help and support.

UCP affiliates can help support caregivers in their communities by engaging in education and outreach efforts using suggestions and materials that can be downloaded for free and/or ordered in bulk for a fee from NFC, including 10 Tips for Caregivers that is also available in Spanish, and a NFC Month Awareness Kit that includes brochures, posters, and handouts.

NFCA will offer a free national TeleClass to learn how to communicate more effectively with health care professionals. The two free one hour sessions will be November 6 and 13 at 2 p.m. ET. For more information visit http://www.thefamilycaregiver.org/

NFCA offers some tips on how to celebrate National Family Caregivers Month in 2008:

  1. Offer a few hours of respite time to a family caregiver so they spend time with friends, or simply relax.
  2. Send a card of appreciation or a bouquet of flowers to brighten up a family caregiver's day.
  3. Encourage local businesses to offer a free service for family caregivers through the month of November.
  4. Invite family caregivers to participate in the National Family Caregivers Association's FREE national TeleClass to learn how to communicate more effectively with health care professionals (see above for more information).
  5. Help a family caregiver decorate their home for the holidays or offer to address envelopes for their holiday cards.
  6. Offer comic relief! Purchase tickets to a local comedy club, give a family caregiver your favorite funny movie to view, or provide them with a book on tape.
  7. Find 12 different family photos and have a copy center create a monthly calendar that the family caregiver can use to keep track of appointments and events.
  8. Offer to prepare Thanksgiving dinner for a caregiving family in your community, so they can just relax and enjoy the holiday.
  9. Take a few minutes to write a letter encouraging your mayor, county executive, or governor to issue a local proclamation establishing November as National Family Caregivers Month. Contact information for state government officials can be found at http://www.firstgov.gov/.
  10. Help family caregivers find information and resources on the internet or locate a local support group.

The NFCA Web site has a wealth of information and resources for caregivers. Please share this valuable resource with your community.

Additional Resources

Win $100: Name the Online Technologies Project

United Cerebral Palsy is partnering with the Autistic Self-Advocacy Network to launch a new project aimed at empowering people with disabilities through online technologies. This project will focus on the themes of "How the Internet Positively Impacts People with Disabilities and the Disability Community" and "Closing the Digital Divide for People with Disabilities." Surveys indicate that people with disabilities are more likely to benefit from the use of the internet but are disproportionately without access to it for both accessibility and economic reasons. We hope to spark a broader conversation about these issues while working to engage the grassroots of the disability community towards bringing about innovative solutions on this topic.

Among the activities this project will include is an online toolkit aimed at empowering members of the disability community to more effectively utilize blogs, online videos and other online technologies. We also hope to raise public attention of the need for internet access for people with disabilities in order to maximize social, cultural, political and economic opportunities for our community.

Although still in the early stages, we would like to hear from you about how the internet is relevant to your life and work as a member of the disability community. In addition, we want your suggestions on names for this new collaboration to address the intersection between online technologies and the disability community's needs and aspirations.

To enter, please contact Ari Ne'eman at aneeman@ucp.org to submit a possible name for this new project, as well as any thoughts you might have about specific ways to address online technology issues for people with disabilities.

The person who comes up with the best name for the project will win a $100 prize.

We look forward to hearing from you!

Name the Online Technologies Project and Win, submit suggestions to aneeman@ucp.org (Click Here)

For more information about the Online Technologies Naming Project, contact Ari Ne'eman at (202) 776-0406.

DigiActive.org: A New Approach to Advocacy

DigiActive.org Logo

A New Approach to Advocacy: Grass in the backgroundHave you ever wondered how you could better educate yourself about differing approaches to the way you advocate for people with disabilities? Have you already used "viral" videos, letter writing or phoning campaigns, or a forward-to-a-friend e-mail campaign, and are looking for something new? Life Without Limits is happy to inform you that there is another tool out there at your fingertips.

DigiActive.org is a robust Web site dedicated to the effectiveness of digital advocacy campaigns.

Simply broken down into the following categories - Description; Tools; How the tools are used; and Analysis of the campaign's overall effectiveness - DigiActive.org takes you through individual case studies, one-by-one, to demonstrate various tools within the application and allows you to explore new methods of approaching the world of digital advocacy.

By utilizing a blog-style format, Digiactive.org also has the capability of using RSS (subscribe to DigiActive's RSS feed) to reach readers who are already familiar with using RSS feeds to their advantage.

This Web site discusses the use of blogs, digital photography, listservs, wikipedias, video, virtual worlds (such as Second Life), social networking, online petitions, instant messaging, SMS text messaging and much more.

As many of us know, state budgets are growing increasingly strained and each state is stretching every dollar as far as they can. By keeping an ear open to other approaches, it may open another door to securing a financial base and quite possibly assist in the expansion of current programs and funding for people with disabilities. By seeking out new ways to develop your advocacy approach, people with disabilities and supporters of people with disabilities will all benefit.

Watch this video on YouTube
YouTube: The New Change-Makers: An Introduction to Digital Activism

For more information, please visit the DigiActive.org Web site or contact Will Hull at (202) 776-0406 x7106.

A Few Words About People First Language by Kathie Snow


Stock Image: Person at sunset in a wheelchairKathie Snow, a writer from DisabilityIsNatural.com contributes this entry in discussing and addressing perceptions about people with disabilities and how we often label before we consider the person first. Her paper, entitled "A Few Words About People First Language," discusses the topic of disabilities and the language society uses in referring to people with disabilities. It is a vision that we all share and work to share with others in our everyday lives. In fact, Julia Scherba deValenzuela, Ph.D., Assistant Professor, Special Education at the University of New Mexico says, "I use [the] People First Language article in my university courses (graduate and undergraduate). It's extremely well-written, clear, and user-friendly..." Please be sure to share this with your colleagues and all supporters of people with disabilities. Together we can help people with disabilities live Life Without Limits.

A few examples of People First Language instead of traditionally used languagePeople with disabilities constitute our nation's largest minority group. It's also the most inclusive: all ages, genders, religions, ethnicities, sexual orientations, and socioeconomic levels are presented.

Yet the only thing people with disabilities have in common is being on the receiving end of societal misunderstanding, prejudice, and discrimination. And this largest minority group is the only one which anyone can join, at any time: at birth, in the split second of an accident, through illness or during the aging process. If and when it happens to you, how will you want to be described? Words matter! Old inaccurate descriptors perpetuate negative stereotypes and reinforce an incredibly powerful attitudinal barrier, which is the greatest obstacle facing individuals with disabilities. A disability is first and foremost, a medical diagnosis, and when we define people by their diagnoses, we devalue and disrespect them as individuals. Do you want to be known primarily by...

Read More

Please take the time to download the long version or the short version of this article to share with others.

For more information, visit the Disability is Natural Web site, or contact Kathie Snow at (719) 687-0735.

End-of-Year Giving : What Are My Options?

Many people make their decisions about charitable donations towards the end of the year. It's the season of giving and receiving and in this case, YOU can receive a tax deduction for 2008 for donations made before December 31st. Tax deductions don't just apply to gifts of cash; you can also claim a deduction for gifts of stock, timeshares even your car.

  1. Support UCP through Monthly GivingMonthly Giving: Want to give generously but worried about writing a big check? United Cerebral Palsy has recently created a monthly giving club Partners for Possibilities. Set-up an automatic deduction from your bank account or credit card. You remain completely in control and can end or make changes to your donation easily online. No big check for you, and UCP can plan and budget our income more effectively to spend less on administration costs and fundraising. Only donations that have been received by UCP can be claimed as a deduction but set yourself up now for 2009. How does $20 a month sound?

    To use this option, please follow this link to our online monthly giving service.

  2. Support UCP through the CFC CampaignCombined Federal Campaign (CFC) # 12004: If you're a Federal employee, designate UCP as your charity with CFC #12004. According to the CFC Web site, it is "the world's largest and most successful annual workplace charity campaign." We think that's encouraging — especially when some of it helps fund our mission of Life Without Limits for People With Disabilities. If you're not a federal employee, ask your company about their own workplace giving program. Some will even match your gift.

    To use this option, please follow this link to the Combined Federal Campaign Web site.

  3. Support UCP and Donate Your Used Vehicle Vehicle Donation Program:Got a clunker in the driveway? Donate your used car, van, truck, boat with a trailer, or recreational vehicle seven days a week, 24 hours a day. It's as easy as filling out our online auto donation form. If you prefer to speak to a person, call the vehicle donation program at 1-877-UCP-CAR1 (1-877-827-2271).

    Other benefits:
    • Free towing anywhere in the United States;
    • No hassle or expense advertising, selling or reparing your used car;
    • IRS tax deduction for 2008 if you donate before December 31st;
    • Supporting UCP with a generous donation without giving cash

    To use this option, please follow this link to UCP's Vehicle Donation Program Web page.

For more information on finding an option that works for your end-of-year giving options, contact Richard Kim-Solloway at (202) 776-0406 x7120.

 


Visit the web address below to tell your friends about this.
Tell-a-friend!


This message was sent to your email address. Visit your profile management or subscription management page to modify your email communication preferences or update your personal profile. To stop receiving Life Without Limits - UCP monthly newsletter, click to unsubscribe (or reply via email with "remove or unsubscribe" in the subject line).